Connecting researchers with funding opportunities from the leading epilepsy organizations.
The ERC funding partners include a growing number of advocacy, professional and governmental organizations all focused on improving the lives of those living with epilepsy.
Aicardi Syndrome Foundation The Aicardi Syndrome Foundation is a volunteer-based, non-profit organization dedicated to raising research funds and awareness for Aicardi syndrome. Registering your child with the Aicardi Syndrome Foundation allows your family to receive the latest research news, announcements and professional information as quickly as possible, as well as learning about ongoing research studies that your child may qualify for. Through the Foundation?s support and family involvement, we can make a difference in improving the lives of children with Aicardi syndrome. https://aicardisyndromefoundation.org/
American Epilepsy Society The American Epilepsy Society (AES) is one of the oldest neurological professional organizations in this country. Our vision is to eradicate epilepsy and its consequences. Our strategic priorities include education, career development and training, research, the development and implementation of best practices to improve patient care, and the awareness of epilepsy and its impact among public and health care professionals.
AES is one of the largest non-governmental funders for those starting their careers in epilepsy research, with dedication of 85% of our grant dollars. AES early career funding programs, which are supported by generous philanthropic donations and non-profit partners, provide grants to research fellows in training and newly independent investigators working across the full spectrum of epilepsy research, from basic science to translational and clinical research. https://www.aesnet.org/research
Centers for Disease Control and Prevention CDC conducts and supports research that guides our public health programs. This work includes conducting studies on self-management, improving surveillance methods to better define the impact of epilepsy on different populations, and evaluating the effectiveness of interventions to improve quality of life for people with epilepsy. http://www.cdc.gov/epilepsy/research/index.htm
Child Neurology Foundation Established in 2001, the Child Neurology Foundation (CNF) 501c(3) is a national nonprofit organization that works through advocacy, research, and educational initiatives to ensure optimal care for all children living with a neurologic disease. CNF'S Mission In Action is to advocate for children and adolescents with neurologic disorders, fund research awards that advance treatments and cures for pediatric neurologic diseases, advocate for the recruitment of physicians in the field of child neurology, and provide families and caregivers with the educational information and resources necessary to access quality health care. http://www.childneurologyfoundation.org/
Coalition to Cure CHD2 2022 Coalition to Cure CHD2 is a 100% volunteer-run organization fueled by our desire to help our children & others with CHD2-related disorders.
Our Mission is to improve the lives of those affected by CHD2-related disorders by funding research necessary for uncovering a cure.
Our Vision is to find safe and effective treatments that will cure CHD2-related disorders. https://www.curechd2.org/
CURE Epilepsy CURE Epilepsy's mission is to cure epilepsy, transforming and saving millions of lives. We identify and fund cutting-edge research, challenging scientists worldwide to collaborate and innovate in pursuit of this goal. Our commitment is unrelenting. http://www.cureepilepsy.org/
Department of Veterans Affairs The Department of Veterans Affairs (VA) set upon its mission to revolutionize services for the Veterans afflicted by epilepsy and other seizure disorders. The VA founded the Epilepsy Centers of Excellence (ECoE), establishing 16 sites that are linked to form 4 regional centers. The ECoE seek to provide the best possible epilepsy care to Veterans throughout the United States with state-of-the-art diagnostic and therapeutic services. Our goal is to deliver the highest quality of ongoing medical care to Veterans suffering from epilepsy. We also seek to promote outreach and educational efforts for both patients and their physicians in order to further the understanding of this chronic condition.
Research funding is available through the VA office of research and development for those with VA positions (http://www.research.va.gov/). http://www.epilepsy.va.gov/index.asp
Dravet Syndrome Foundation The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families. http://www.dravetfoundation.org
Epilepsy Foundation The Epilepsy Foundation, a national non-profit with more than 47 affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The Foundation works to prevent, control and cure epilepsy through community services; public education; federal and local advocacy; and supporting research into new treatments and therapies. The Foundation works to ensure that people with seizures have the opportunity to live their lives to their fullest potential. http://www.epilepsy.com/
FACES - Finding a cure for epilepsy and seizures FACES (Finding A Cure for Epilepsy and Seizures) is affiliated with NYU Langone Medical Center and its Comprehensive Epilepsy Center. FACES funds research to improve epilepsy care, advances new therapies, and fosters a supportive community for children, families and caregivers who live with the challenges of epilepsy.
The mission of FACES is to improve the quality of life for all those affected by epilepsy and seizures. http://faces.med.nyu.edu
FamilieSCN2A Foundation "Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders affect the entire family. Our team of leaders strive every day and in every way to improve the lives of not only the patients, but the entire family.
Our MISSION is to accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world.
Our VISION is a world with effective treatments and cures for all SCN2A-related disorders.
Our Values are URGENCY, INTEGRITY, COLLABORATION, and INCLUSION. https://www.scn2a.org/
Glut1 Deficiency Foundation The mission of the Glut1 Deficiency Foundation is to increase awareness of and advocacy for Glut1 Deficiency, educate others, and support researchers as they work toward better understanding, better treatments, and an ultimate cure. http://www.g1dfoundation.org
Hope for Hypothalamic Hamartomas Hope for Hypothalamic Hamartomas (Hope for HH) is a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas (HH). Our goal is to create a single, credible source for information about the diagnosis, treatment, and support of individuals with HH. Every family touched by this rare disorder has a unique and often heart-breaking story of how they attained a correct diagnosis. http://hopeforhh.org
International Foundation for CDKL5 Research To lead the way in finding a cure and treatments for CDKL5 disorder by funding global research efforts, and increasing awareness of CDKL5 disorder, while enhancing the quality of life for those affected by CDKL5 disorder, by providing information, programs, and services. www.CDKL5.com
Koolen-de Vries Syndrome Foundation The Koolen-de Vries Syndrome Foundation (KdVSF) is pleased to announce their Investigator Grant program. Through our Investigator Grant, KdVSF hopes to accelerate the development of therapeutics for the treatment of those living with Koolen-de Vries Syndrome (KdVS). This grant program is designed to facilitate investigations that will jumpstart research into KdVS and lay the groundwork for future grants from industry, government and nongovernmental sources, and private funds. Grant recipients are asked to give 6-month updates to the KdVS community and the Medical Advisory Board on the progress of the research. Previous research has focused on describing KdVS; we are now ready to move into therapeutics or a cure to improve the lives of those individuals living with KdVS. https://kdvsfoundation.org/kdvs-foundation-announces-investigator-grant/
LGS Foundation The LGS Foundation is a non-profit organization dedicated to improving the lives of individuals with Lennox-Gastaut Syndrome through research, programs, and education http://www.lgsfoundation.org/research.html
National Institute of Neurological Disorders and Stroke (NINDS) The mission of NINDS is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.
To support this mission, NINDS:
Supports and performs basic, translational, and clinical neuroscience research through grants-in-aid, contracts, scientific meetings, and through research in its own laboratories, and clinics.
Funds and conducts research training and career development programs to increase basic, translational and clinical neuroscience expertise and ensure a vibrant, talented, and diverse work force.
Promotes the timely dissemination of scientific discoveries and their implications for neurological health to the public, health professionals, researchers, and policy-makers.
PCDH19 Alliance The PCDH19 Alliance was started by three parents of children affected by PCDH19 Epilepsy in an effort to support ongoing research into this debilitating disorder.
Our mission is to improve the lives of children and families who are affected by PCDH19 Related Epilepsy. The Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment. https://www.pcdh19info.org/
PERF - Pediatric Epilepsy Research Foundation Enhance the quality of life of children with epilepsy and/or other neurologic disorders. To accomplish this mission, the Foundation, in particular seeks to support:
- Efforts to improve treatment options for infants, children and adolescents with epilepsy.
- Meritorious clinical and basic science research related to epileptic conditions in children.
- The encouragement of the recruitment and education of young physicians in the field of child neurology.
Ring 14 At Ring14USA, our main goals are:
- promoting and funding research initiatives to find effective treatments and therapies for the children affected by these disorders,
- raising awareness through education, and
- supporting the children, families, and caregivers in as many ways as possible.
We professionally review all research initiatives into Ring14, and we coordinate our international efforts with our sister organization in Italy, Onlus Ring14. http://ring14usa.org
TBC1D24 Foundation The foundation was started by two mothers with children affected by the TBC1D24 mutation. They found each other and an amazing online community, a small but mighty group.
?With the blessing of other affected families, the TBC1D24 Foundation was created with three simple(-ish) aims:
1. A landing place for those with a recent diagnosis to connect them with appropriate community members, resources, and information.
2. To raise awareness about TBC1D24 and it's symptoms, to educate affected families and those who treat and support them.
3. To fundraise to support and further research finding more information and effective treatments.
The Bow Foundation The Bow Foundation is dedicated to supporting GNAO1 families, research and awareness.
The Foundation was launched in 2017 by parents of children with GNAO1 disorders. Headquartered in the United States, the Foundation is recognized by the IRS as a nonprofit charitable organization.
Our vision is to build a better tomorrow for GNAO1 patients and their families by fundraising to support medical research that leads to a more informed GNAO1 body of knowledge, better patient treatment options and an eventual cure.
The Bow Foundation has three specific areas of focus:
1. Scientific Research
2. GNAO1 Family Support
3. Awareness and Advocacy https://gnao1.org/
The Epilepsy Study Consortium The Epilepsy Study Consortium's goal is to streamline the processes for determining the potential impact of new therapies, and reduce the organizational and regulatory barriers that hinder investigators and patients from carrying out this type of research. http://epilepsyconsortium.org
Tuberous Sclerosis Alliance The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected.
The Tuberous Sclerosis Alliance was founded in 1974 by four mothers coming together to provide fellowship, generate awareness, pursue more knowledge and provide hope to those that shared the common bond of tuberous sclerosis complex. These goals are still driving the organization today. http://tsalliance.org/grants
U.S. Department of Defense The Congressionally Directed Medical Research Programs' Epilepsy Research Program (ERP) envisions a time when post-traumatic epilepsy can be prevented or optimally managed. The ERP was initiated in 2015 to develop an understanding of the magnitude of post-traumatic epilepsy (PTE) within the military and to expand research into the mechanisms by which traumatic brain injury (TBI) produces epilepsy. http://cdmrp.army.mil/erp/
For more information about how to join the ERC as a funder please contact us at: info@EpiRC.org.
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