The PCDH19 Alliance was started by three parents of children affected by PCDH19 Epilepsy in an effort to support ongoing research into this debilitating disorder. Our mission is to improve the lives of children and families who are affected by PCDH19 Related Epilepsy. The Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment.

URL: https://www.pcdh19info.org/
Contact: Julie Waters